Wednesday, February 25, 2009

2 days behind

Yesterday (Feb. 24th) Xavian starting his chemo treatment. He received methotrexate over a 4 hour period. This drug stops the cells from making DNA. He then received an IV push of vincristine. This one prevents cell division.

Side effects of methotrexate are mouth sores. So far we haven't seen any. Side effects of vincristine (within two to three weeks) is hair loss. This won't be as bad as some other effects we may see; such as loss of appetite. He had been eating well up until late this afternoon. This may be because he's too sleepy.

Today (Feb. 25th) he was given what is called a "rescue drug" (Leucovorin), which is a normal part of this protocol. Leucovorin stops the effect of methotrexate on the bone marrow blood cells and the lining of the mouth, stomach and intestines. Once the methotrexate level is <0.1 micromolar he will start the other chemo drugs. When the level was checked yesterday after receiving methotrexate it was at 1085.34. Today, after receiving the "rescue drug" it was down to 19.96. Much improved. They will check his level tomorrow morning and will go from there.

Because of the toxic drugs, Xavian is susceptible to hearing loss. This morning he was given a hearing test. He passed in both ears. Even though there is fluid behind one of them. He will continue to be given hearing test each time we are admitted for chemo treatments.

Tomorrow is Matt's birthday. Don't tell him I told you. He's not too big on birthdays. So, make sure you wish him a happy one. Then, Friday my mom will come sit with Xavian while we close on our new home. Dante will be keeping my aunt on her toes. We will try to keep updating each day so that those praying will know how to pray more specifically.


  1. Thanks for keeping us updated, we are praying for you. Isn't it amazing how quickly you become a medical professional when its your child that is being cared for?

    Oh yeah, HAPPY BIRTHDAY Matt!

  2. Just wanted to let you know that I have been praying for you guys too! Also, brought you up for prayer at my church.
    We are praying that He and Ryan are going to be lights to the world with their life story, although Xavian won't remember his.
    He is precious, God bless you all!
    Kindra Bray

  3. Happy birthday, Matt.
    We love you! Kay and Billy Pape

  4. I know what it's like to have so many medications going through your child's body, but I can't image what it's like to have one so young going through this. It's tough as a mother/parent to watch your child suffer, but know that God is with him taking care of him every step of the way. It seems so strange that in a week's time, both Ryan and Xavian were found with cancer, but I know there was a reason for it. Please know that you are in my prayers - I pray that you will find peace that surpasses all understanding and strength to get through this.

    This scripture was the first that I remembering hearing the first night Ryan was put in the hospital, and it helped me through the first week and still helps. Hope it helps you as well...

    “God is our refuge and strength, a very present help in trouble, Therefore we will not fear though the earth give way, though the mountains be moved into the heart of the sea, though its waters roar and foam, though the mountains tremble at its swelling.” -Psalm 46:1-3

    Love you guys!!!!