"Xavian is still making progress. The nurse practitioner who works for our neuro-oncologist called today and we have an appointment Monday to see what type of cancer we're dealing with and what's next. I pray that it's not bad and it's easily treatable. That is my hope and my prayer. They will also take a good look at Xavian and see where he is with his recovery. Please say a special prayer this weekend for our sweet little man." As said by Matt on facebook
I am very anxious about our meeting with the neuro-oncologist Monday. I pray that we have nothing but good news from her. Xavian has gone all day without any Tylenol and did great. I am looking forward to Monday being his last dose of decadron (steroid). It seems to make him fussy and he doesn't like to take it. He only got up at 4am to eat then slept again until 8am. Overall he is doing better than I expected. I'm not really sure what I expected. Thanks for the contiuned prayers. We couldn't ask for better friends or family.
On a side note; I have the best husband! Matt wrote the poem "I Kneel" on the right hand side of our blog. I am so proud to call him my husband and best friend. I wouldn't want to stand next to anyone, besides him, during this trial.
8 months ago