So, Xavian is at home. He is continuing to make good progress. We cut back on his steroid medication as directed by the surgeon. We'll steadily decrease the dosage until he's not taking it anymore. He's also taking anti-seizure medication, but I'm not sure how long he'll need that.
We're still waiting to get the results back from the test on the tumor. We really don't know what to expect at this point. Everything has been a surprise and we're just anxious to know what the next challenge is.
Xavian is eating well, although he's not interested in the bottle, just mom. He slept very well last night, only getting up once to eat. He is still very irritable and still seems sensitive to bright light and certain sounds. He's been very clingy to his mommy. On a positive note, he smiled at me a lot today and that made my heart feel good. I spent most of the day with Dante. We went to Target to get a toy while Cassie, Denise (Cassie's mom), and Charity (Cassie's sister) stayed home and comforted Xavian. My parents went back to Jackson this morning and Cassie's brother and father went back to Kentucky this afternoon.
Like I said though, we really just don't know what to expect and that's tough. I'm mentally, emotionally, and physically drained at this point and I'm pretty sure Cassie is too. This is already by far the toughest thing we've ever dealt with in our lives, but we're hanging in there. When you're in the position we're in, you realize that life doesn't stop because you are dealing with something difficult, instead you have no choice but to bear down, accept what you are facing, be thankful for all the wonderful things you have, and continue to live a happy life... and if you truly believe in what we believe in, you understand that this life isn't just about you anyway.
8 months ago