It's late Tuesday evening. Today was a good day, all things considered. I held Xavian for three or four hours on my chest. He and I both fell asleep. Both of our mouths opened, catching flies. Cassie was laughing at us I'm sure, but she was laughing and that brings a smile to my face.
We had a few visitors today. It's so refreshing to constantly see those concerned faces walk through that door. They aren't here because it's fun for them. They aren't here because it's going to make them money. They are here with concern for another's well-being and Cassie and I will never forget that. Isn't that what God is all about? Lifting others. Loving others. Caring for others. The unselfishness that I've witnessed over the past week has given me a new perspective on life and I don't ever want to forget this humbling feeling.
Xavian continues to recover from his surgery. He's a bit irritable due to the brusing from the needle pokes and the nature of the surgery. It's interesting how the brain reacts to such a surgery. Seizures, irritability, etc. Xavian had a couple small seizures in PICU, but nothing that the staff was concerned about or didn't expect. He's eating more than he did before he got sick Thursday, or at least it seems. We know that this recovery is just one challenge and the chemotherapy that likely awaits us will be yet another challenge, but prayer has brought my son through surgery and prayer will bring him through chemotherapy if that is the route we have to take and if that is God's Will.
Xavian is resting comfortably in his bed at the moment. His mom is resting comfortably next to me. Dante is resting comfortably in his crib at our home. This brings me peace because my family is safe and resting. This brings a smile to my face.
4 months ago