Sunday, April 5, 2009

Round 2 Cancelled

We were discharged Saturday morning as Xavian's Methotrexate levels reached a safe level for us to go home and let his body recover for a few days before restarting the 2nd round of chemo. These chemo protocols are designed to work in specific ways. In the protocol that is being used for Xavian, the different chemo drugs work together to achieve a goal. If one of the drugs doesn't or can't do it's part, then the entire protocol is in jeopardy. That basically describes what happened during Xavian's 2nd round of chemo. The Methotrexate didn't do it's part because something in Xavian's body wouldn't let it leave. The Methotrexate levels stayed too high for too long and the safest thing to do once it was at a safe level was to let Xavian's body rest and prepare for the next round. Some of his cell counts were lower than normal range, but the counts weren't too low to continue the 2nd round, the doctors simply didn't want to give Xavian more than they thought his body could handle. While this is an extremely aggressive set of chemo treatments, they doctors are being very careful to not give Xavian more than his body can handle. As you can imagine with a four month old, it's a difficult balancing act. That's why they make the big bucks.

So where do we go from here? Wednesday we will visit the clinic to see if Xavian is ready to start the 2nd round again. Let's hope he can start and we can knock this cancer out! As much as it sucks to live half your life in a hospital room, we'll do whatever it takes to get Xavian healthy!

We're at home trying to rest. We're still in transition mode after recently moving into our new home, so it isn't where we want it to be yet, but it is a home and we do have plenty of room now, so we're thankful for that.

Dante continues to be a wild, sweet kid and is doing well. We're thankful for that as well. It's about time for him to get another haircut. I think his hair grows faster than his mom's hair.

For all of our prayer warriors out there, please continue to pray for us. We need the following...

  • Patience

  • Strength

  • Healing for Xavian's body

  • Rest for Cassie and Matt

  • Feelings of security for Dante when Cassie and I are away from him

  • Ability for me to take care of my family and balance everything else in life (work, health, financial, etc.)

God Bless!


  1. I missed you by a couple of hours on Saturday. I came bearing all things medical...should have called first. I am sorry that you are having to repeat this round. We are praying for Xavian and your family. Let me know if you need me to drop anything by at anytime.

  2. Matt - I love you all more than you will ever know. I am praying all the time for Xavian. My family, friends and email buddies are doing the same. I pray that God will heal Xavian's little body soon. Xavian is a little fighter, he has proven that. God Bless you all and just please let me know if you need anything - I am only a phone call away! Love, Aunt Wanda

  3. Hey guys,
    we're still here. Friends ask for updates all of the time. Thanks for keeping up with this website, I know it is just "one more thing" but it is so good for us to know where you are and how you are doing... Get some rest and we'll start praying now for Wednesday! viv

  4. I'm definitely praying for all of you. (I am a friend Troy and Victoria's)

  5. Cassie and Matt,
    Our family, friends, and our church members will pray this Sunday at 10:00 am for Xavian health. Cheryl and I will turn into daily prayer warriors.
    With God all things are possible.—Matthew 19:26
    We believe in God’s healing power.
    Cheryl & Henry

  6. Hey. I haven't commented before but wanted to tell you that I am praying for y'all. I'm friends with Troy and Victoria through their church. We love them dearly and hurt for them and we're hurting and praying for you too! Just wanted you to know of one more person praying...