No more feeding tube

Yesterday afternoon the nurses pulled Xavian's feeding tube, per doctors orders. The doctors had the pleasure to see him throw up all the mucus junk he'd been doing for several days. They think the tube was making him gag and extremely uncomfortable. Because he is still not eating anything PO (by mouth) they will start him on TPN (iv nutrition) this afternoon. So far, this morning Xavian has gotten platelets. This is expected. He is also not feeling very well. Very fussy! He'll doze off then wake up and can't get back to sleep. This makes him very agitated. I think he has some teeth trying to come in. That, combined with low counts make for a very unhappy 7 month old. Oh, that reminds me...Xavian is 7 months today. It's hard to believe we have spent 5 months, now, in and out of the hospital. Seems like it's been mostly IN.

We still don't know when another MRI will be ordered. This will determine when and if another round of chemo will be done.

Thanks to all that have kept our family in prayers these past 5 months. Thanks to those that have helped either with finances, food, or watching Dante when we can't be there. You all have made this difficult time that much easier. If that makes sense.

Xavian has finally settled down. So, I think I am going to take a nap too.