Xavian has seemed to be in a better move the past few days. He actually smiled a few times yesterday and today. His white blood cell counts are still very low and he continues to receive a few platelet infusions as well as the white blood cell booster injection (I can't think of drug names right now, sorry). He also continues to have lots of gas, which makes him a bit fussy. Last night he had a few BMs for the first time in a while. It had to have made him feel better. He hasn't had fever much, which is a very good thing. Since he can't swallow and he's had congestion, mucus builds up in his throat, making him very uncomfortable at times, so they've started doing throat suctions on him every day or two. It seems to have helped a lot. We're also keeping him propped up on a boppy pillow. He drools a lot, so we have to suction his mouth many times a day, sometimes we just stand there with the suction device, generally when he is thinking about a 10 ounce sirloin steak. The part about the steak was a joke. He still hasn't eaten lately.
So when can we go home? We can go home when his white blood cell counts go up, when he isn't running fever, and when he's eating.
Mom and Dad are tired. We are taking turns staying at the hospital. It's difficult to try to figure out who is going to stay where. It's nice to sleep in your own bed, but you feel guilty not being with your spouse and child. Dante is in Atlanta until Friday staying with my sister and her family. We can't wait to see him. It took me about 10 minutes before I was missing him.
General prayer needs:
- Strength, courage, patience, faith for all of us
- Positive thinking
Specific prayer needs:
- Xavian's white blood cell counts go back up and he starts eating again
- We can all be at home enjoying our new home (that we worked so hard for) as a family
6 months ago